It's been a week since we arrived home from our ten day journey south
and back. I've been thinking about our time with my mom in the memory
care facility and thought I'd write about it here. Because of her wandering behavior she is in the locked part of the facility called
Reminiscence. The fellow residents are all in
various stages of dementia and Alzheimer's. Some need a caregiver for
every move they make from their rooms to the dining hall and back; some
have their heads down all day long; some play games at the dining tables
between meals; some walk around on their own with walkers. No one can
leave without knowing the code to get out.
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My mom laughing at the news, which she said seems to be all about sex lately! |
It sounds bleaker than it is. The caregivers there
are truly remarkable human beings. We were struck by their calm
demeanor; their compassion; their non-stop work like a day care center
for elderly in Depends.
We did have some interesting,
weird, and a bit disconcerting (bordering on traumatizing) experiences
while we were there, but it was just a regular day for the staff. On the
first day, we sat in the little comfy living room area with my mom. It
has a music player and a cabinet full of things to distract idle hands.
While we were there we heard seriously loud screaming coming from the
dining room across the hall. A woman was screeching, "This is my house. I
bought it. I want everyone to get out of here. Get out!!!" She yelled that on the
top of her high pitched lungs over and over. It was absolutely wild. It
went on and on. The staff intervened; she persisted. The staff tried to
get her to her room. She persisted. My mom decided she'd heard enough and
wanted to go back to her own room. In the hallway we crossed paths with
the screamer. She yelled at us, "Get out of here. This is my house. Get
out!!!!" My mom, of course wanted to engage, but we quietly moved her
on. Yikes.
The next day, while we were sitting in the
same living room area with my mom, the same woman started screaming in
the hall. SCREAMING. She had to be constrained by one of the bigger
caregivers. She had to be stopped from trying to go into a restroom that
was already being used by someone. The battle was fierce, like a
holding back a wild creature. Another very disconcerting moment for all
of us.
And still the staff was calm and attentive. It made us feel like my mom is really in a good place.
We
"met' several other residents. There was one who said the exact same
thing to us over and over, everyday for five days. "I want to go home. I
just want to go home. I tell them, and they won't help me. I just want
to go home." She said it us in the dining room. She said it to us in the
hallway. She said it us on the patio in the afternoon sunshine while
the hummingbirds came to check out the flowers and feeders. She said it
to us in the little comfy living room. She just wants to go home; it's a
fairly common lament for Alzheimer's patients, even those living in the
homes they've been in forever.
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My mom dancing with a caregiver |
One
of the highlights of the visit was seeing the entertainment provided to
the residents in the afternoons. You would be surprised by the lovely
performers who come to sing for an hour after lunch. They bring speakers
and equipment and really put on quite a show. They offer maracas and
tambourines to the residents, and they sing all the old oldies that the
residents know and love. One of the things that I've read about
Alzheimer's is that music somehow stays familiar even when so many other
memories have faded. Residents in wheelchairs with their heads down,
who never look up, would sing a refrain right on cue when the
microphone came their way. It was truly beautiful to see. That, and
other residents rocking their shoulders in perfect rhythm and motion to the
music. Not many would get up and dance, but my mom did with one of the
sweetest caregivers. I'll confess that I stood in the hallway and had a
rather nice little dance with one of the residents (who swears he
doesn't really live there, and really will only be there for two weeks,
and wouldn't we like to come to his real house and stay with him!).
This
is life in a memory care facility. We were both saddened and
enlightened by the experience. I'll tell you this, it made me want to
volunteer at a local facility, and maybe I will one day...maybe I will.